Information on Independent Advocacy in the Mental Capacity Act, Coma & Disorders of Consciousness and Court of Protection:

Advocacy – Jakki Cowley, Mental Capacity Act

Coma & Disorders of Consciousness Research Centre


In this blog, Jean Simpson posts about her daughter Jodie, who was left in a disorder of consciousness for 4 years, until she was finally allowed to be at peace: Jean’s Blog

The following books are interesting accounts from family members regarding their relatives who were left in, and subsequently died following, disorders of consciousness caused by traumatic brain injuries:

The Last Act of Love; Cathy Rentzenbrink.

Beyond The High Blue Air; Lu Spinney.